Singer-songwriter Rebecca Ferguson and ex-footballer Graeme Souness will also be recognised at the investiture ceremony.

Relief Therapeutics Announces Positive Final Results of RLF-TD011 Clinical Trial in Epidermolysis Bullosa ...

12-year-old Casey Connors is a sixth class student in Clondalkin, and suffers from the most severe form of Epidermolysis Bullosa, otherwise known as Butterfly Skin, which can cause extensive ...

The charity supporting people with the incurable skin condition epidermolysis bullosa (EB) is to receive ring-fenced funding from the HSE, it emerged today. The agreement was reached earlier this week ...

“The EB community is thrilled by this designation, as EB patients and families remain hopeful for more effective treatments,” said Brett Kopelan, Executive Director, DEBRA of America, the largest EB ...

The FDA had asked for more chemistry, manufacturing, and controls information after reviewing an earlier BLA on the investigational therapy.

Oscar-nominated actor Colin Farrell finished the final 4 kilometers (2.5 miles) of the Irish Life Dublin Marathon while ...

In a powerful move for rare disease awareness, Saudi advocate Abrar Al-Othman, living with the genetic disorder Epidermolysis Bullosa (EB), has launched The Butterfly, the Kingdom's first nonprofit ...

The 48-year-old star ran the marathon to raise funds for DEBRA, an Irish charity that supports people living with the incurable genetic condition epidermolysis bullosa (EB) — also known as ...

The 'Penguin' star and his friend Emma Fogarty, who has the skin condition epidermolysis bullosa (EB), raised over $850,000 for charity Debra Ireland Sam Barnes/Sportsfile/Getty Colin Farrell ...

The Hollywood star said Emma Fogarty - who is Ireland's longest survivor with the genetic condition epidermolysis bullosa (EB) - is "what courage is all about". Image: Pic: PA Born with no skin on ...