Epidermolysis Bullosa News Home
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
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Epidermolysis Bullosa News is a digital platform intended to provide the epidermolysis bullosa (EB) community with the most recent news and information on EB, as well as first-hand community perspectives from our patient and caregiver columnists.
News Archives - Epidermolysis Bullosa News
Aug 16, 2020 · Dupilumab seen to heal blisters in epidermolysis bullosa acquisita. Treatment with dupilumab, an injection therapy approved for certain inflammatory disorders, was found to completely heal blistering in a woman in Germany with epidermolysis bullosa acquisita (EBA), a case report describes.
What Is Epidermolysis Bullosa? – Epidermolysis Bullosa News
Jul 13, 2021 · Epidermolysis bullosa (EB) describes a group of rare skin disorders that lead to fragile skin that easily blisters and tears. Blistering may also be found within the body, like blistering of the mucous membranes that surround organs and orifices (including the mouth).
CRISPR Gene Editing May Restore DEB's Missing Collagen
Nov 18, 2022 · Getting gene editing based on CRISPR, a kind of molecular scissors, delivered directly into cells may help restore the production of type VII collagen, the protein that’s missing in patients with dystrophic epidermolysis bullosa (DEB), a mouse study found.
Filsuvez Gets Marketing Nod for DEB and JEB in Great Britain
Sep 9, 2022 · Filsuvez (Oleogel-S10) has been approved in Great Britain — England, Scotland and Wales — for treating wounds associated with dystrophic epidermolysis bullosa (DEB) or junctional epidermolysis bullosa (JEB) in patients ages 6 months and older.
Gene-editing therapy corrects defects in skin cells from EBS boy
Jan 26, 2024 · A gene-editing therapy to inactivate a harmful mutated copy of the KRT14 gene reversed defects in skin cells taken from a child with epidermolysis bullosa simplex (EBS), according to recent research.
Filsuvez (birch triterpenes) for epidermolysis bullosa
Jan 2, 2024 · What is Filsuvez for epidermolysis bullosa? Filsuvez (birch triterpenes), previously known as Oleogel-S10 or AP101, is a topical gel that’s approved to help promote wound healing in people with dystrophic epidermolysis bullosa (DEB) or junctional epidermolysis bullosa (JEB).
First patients enrolled in trial of RLF-TD011 wound spray for EB
Feb 17, 2023 · A proof-of-concept trial evaluating the effects of Relief Therapeutics’ antimicrobial wound spray RLF-TD011 — formerly known as APR-TD011 — in people with epidermolysis bullosa (EB) has enrolled its first three patients, the company announced.
AGLE-102, Potential DEB Treatment, Given FDA Recognition and …
Oct 7, 2020 · The U.S. Food and Drug Administration (FDA) has given rare pediatric disease designation and fast track status to AGLE-102, a potential therapy for dystrophic epidermolysis bullosa (DEB) being developed by Aegle Therapeutics.